Short version: Any tips on living in constant fear of diabetes complications?
Long version: Hi, all. Brand new here and extremely stressed. Please bear with me.
I gained 85 pounds at 9 years old, started going blind at 10, was totally blind by 12, and was diagnosed as T2 at 19. No one thought to check my blood sugar until then. My BS was 480 and my A1C was 8.7. God only knows how high it had been beforehand. I changed things around with diet and exercise (except when I didn't,) and my A1C would swing between 5.5 and 9.8. I also went long periods without going to the doctor at all. I'm now 28 and have kept my A1C at 5.6 for going on three years.
My blood pressure stays on the very high end of normal. I usually get 4-6 hours of sleep a night. My A:CR swings between 34 and 71. My doctor knew there was protein in my urine for years, but I just learned about it a few weeks ago. No treatment was ever offered. Thankfully, my EGFR is still extremely high.
I began experiencing nearly constant PVC's (the sensation of skipped heartbeats) three months ago. 1,000-10,000 a day. I was referred to a cardiologist. My echo came back "essentially normal," whatever that means, and the 48 hour Holter monitor only showed PVC's with underlying sinus rhythm. The cardiologist assumed my PVC's were caused by lack of sleep and chronic dehydration. To be fair, she also told me 28 year olds are too young to have heart problems, which kind of blew my mind under the circumstances.
My questions are:
1. How do you know if you've hit the point of no return? That is, how do you assess whether your vascular system is just too far gone to survive much longer?
2. Is there any pattern to complications, or can they strike literally any body part in any order?
3. How do I account for the 15 or 16 years that my blood sugar was uncontrolled? I'm... terrified. Or whatever's more than terrified. I'm convinced I'm dying.
Any thoughts would be very, very appreciated.